Friday, October 27, 2017

October 20, 2017 MRI

Today we ventured up to Texas Children's Hospital for another maintenance MRI, this lets us know what his brain tumor is doing. Bennett was so anxious and worried that he was going on the "space ship-aka-MRI machine" that he actually threw-up. Mommy was a worried mess as well with scanxiety, but I kept the happy face on because I know that Bennett feeds off of our positivity. Each time he has an MRI now they have to give him some form of Xanax to calm him down. It only helps a little. As a toddler when he began this journey he was never afraid, scared...only a smile on his face. No tears. The location of his tumor was pressing on a gland that suppressed feelings. As the tumor has shrunk and he's gotten older, he's now very cognitively aware of what he is really going through, and that scares him. I know I had hoped that he would have that veil and rose colored glasses for as long as he could, but it seems that door has shut and new one has opened. As we move ahead all we can do is stay positive, live in the moment and thank God that his tumor is not growing, it has stabilized. I know we wish it would have continued to shrink, but for now, stable is good. I'll take that any day over a growing mass in his tiny little brain.

This journey has taught me so much about love, understanding, kindness, paying it forward and having hope. My son is my hero. His most recent results from today's MRI is that it is stable. Thank God for that. We will continue to monitor it, his next MRI is in April 2018. We watch, we wait. We remain vigilant for any signs that the tumor is trying for round 2. But for now it looks like we may have just killed that "little" giant. Until next time...

Bennett's Super Mommy

Monday, April 17, 2017

April 14, 2017 MRI

Today Bennett and I ventured down to the main campus for his maintenance MRI. It gives us a look at what the tumor is currently doing. Bennett had a severe panic attack prior to going under...I think it all has gotten so real for him, that he knows its not normal anymore for a child to go to the hospital, and it scares him. They gave him a fast acting anxiety rx to help calm him down, but he still faught going under the anesthesia. After the MRI we took the wheelchair over to the CCC 14th Floor Cancer Center and got to talk with his oncologist with the results and where we are headed for the next year or so. The results were that the tumor was stable. :) Wonderful news! So if he continues on like this for the next 5 years, we can finally move him to the Cancer Survivor Clinic. I cannot wait for that day. I'm emotionally drained from this cancer.

Monday, March 20, 2017

Bennett's First Spring Break

We want to give Bennett every opportunity to have amazing memories, especially after all he has been through. So for his first spring break we chose to take him on a Cruise to Cozumel, he loved it! He was able to swim and play, stuff him self with treats and finally live like a normal kid. It's something we will cherish forever. Here are a few shots from our trip... 




Sunday, March 12, 2017

Bennett Turns 7

Just wanted to give everyone an update on where Bennett is right now. We had an MRI back in December, the tumor isn't growing, but isn't shrinking anymore either. so it remains stable at this time, which we re so grateful for. Another MRI will be in April to followup, so I will post those results then. It's been a crazy few months, but he is doing wonderfully well and growing like a weed. I just wanted to post some pictures of his 7th Birthday Party we had recently. Lots of Love, Mommy Nester