Friday, April 10, 2015

April 10, 2015

Today we went in for a port flush and monthly bloodworm, so I thought it would be a good time to update you on Bennett. He is back at Montessori School (Smaller Scholars) and doing great. His teachers there are so wonderful and understanding of everything that he has been through. We couldn't have been luckier picking such a great school. His therapies have been going well, but he still needs PT-OT-ST weekly, so he will continue to receive them through the end of August. His hair is still gone, so for now he is rocking the mohawk...which he does smashingly...I have to fight the little girls off at the door of his classroom at school. ;) Ladies Man. We have out next MRI scheduled for June 16th...fingers crossed that the tumor is stable so we can have his port removed and move towards becoming normal again. 

As far as fun activities, we have had quite a few...We got to go for a ride in the Met Life Blimp courtesy of the Sunshine Kids, We met the Zach Brown Band at the HLSR; and even got the Hunt Easter Eggs at School! Been super busy having fun.

On a side note Mommy lost her job....so she has spent the past month job hunting...just when one thing in my life gets better, another falls apart....I really need to be cut a break Jesus...if you are listening...

Will update you all once we have our MRI in June. 

-Mommy Nester